Following on from recent news and social media speculation about NHS Digital and data sharing as a number of posts are circulating on social media about the national data opt-out, containing incorrect information.
We thought it may be helpful to provide some key information and links to help you with your decision making and if you might be now thinking of opting out of sharing any of your data as it’s your choice.
Please see the NHS digital website’s information about understanding the national data opt out. Although sometimes information about your health and care does help the NHS to improve your individual care, speed up diagnosis, plan your local services and research new treatments, you still have the option to decline sharing data that goes beyond the provision of your direct care.
Please be aware that there are two types of opt out:
- Type 1 opt out is opting out of NHS digital collecting your data
- National data opt out is opting out of NHS digital sharing your data
For more information, please visit www.digital.nhs.uk/national-data-opt-out-opting-out-of-nhs-digital-sharing-your-data
Have a look at our Privacy Notice which explains what we do with your data and who we share it with.
- We do not sell health and care data
- We do not share data with marketing and insurance companies
There is also a great webpage from NHS Digital with FAQs and myth-busting.
Please see the ICO webpage for more information about your rights.
If you require any further information then please do not hesitate to contact our Data Protection Officer by emailing [email protected].